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We are Provide Fully Privacy & Protection. Ethical health research and privacy protections both provide valuable benefits to society. Health research is vital to improving human health and health care. Protecting patients involved in research from harm and preserving their rights is essential to ethical research. The primary justification for protecting personal privacy is to protect the interests of individuals. In contrast, the primary justification for collecting personally identifiable health information for health research is to benefit society. But it is important to stress that privacy also has value at the societal level, because it permits complex activities, including research and public health activities to be carried out in ways that protect individuals’ dignity. At the same time, health research can benefit individuals, for example, when it facilitates access to new therapies, improved diagnostics, and more effective ways to prevent illness and deliver care.



Existing ethical, legal, and other approaches to protecting confidentiality and privacy of personal health data offer some safeguards, but major gaps and limitations remain. The recommendations at the end of this chapter are intended to strengthen current protections for confidentiality and privacy of health-related data, particularly for information acquired by HDOs.

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